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| Provider Name: | Fanconi Hope |
| Provider Type: | Local Offer |
| Name: | Fanconi Hope |
| Address: | PO Box 905,
Southsea,PO1 9JG
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| Telephone: | 0300 330 1410 |
| Web Site: | http://www.fanconihope.org/ |
| Email: | rad@fanconihope.org |
| Costs: | Contact provider for details |
| Last Updated: | 13/08/2020 00:00:00 |
| Eligibility Criteria: | - Available To All - A Universal Service
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| Care for children aged: | Up to 99 years |
| Registered for 2yr Old Funding: | No |
| Registered for 3/4yr Old Funding: | No |
| Languages Spoken: | |
| Availability: | Open All Year |
| Vacancy Notes: | Contact provider for details |
| Service Description: | Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological and head and neck cancers, together with other complications both in childhood and in later life.
Whilst the bone marrow failure element can be corrected through bone marrow transplantation from a well-matched donor, there is still no cure for the cancer-predisposing condition .
Fanconi Hope is a national charitable trust set up in 2008 by parents of FA-affected children and clinicians with an interest in FA to provide guidance and information for patients, families, clinicians and researchers.
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