About the service
Service Description:Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological and head and neck cancers, together with other complications both in childhood and in later life.
Whilst the bone marrow failure element can be corrected through bone marrow transplantation from a well-matched donor, there is still no cure for the cancer-predisposing condition .
Fanconi Hope is a national charitable trust set up in 2008 by parents of FA-affected children and clinicians with an interest in FA to provide guidance and information for patients, families, clinicians and researchers.
SEND support
Referral Criteria:Self Referral
Provider Links:Not Available